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KEREN ELIANA PARENT ADVOCACY
Consultations and Sensitivity Training to schools and summer camps, to help them develop a more inclusive view of children with disabilities and increasing inclusion-building skills.
Ongoing Support Groups. Offering a variety of support groups for mothers, fathers, siblings and extended family members to deal with the impact of having a special needs family member.
Community Seminars. Topics geared to parents, teachers, therapists, caregivers, and members of the community who need information pertaining to general issues of child development, education and family life. Topics and dates to be announced.
Guest Speakers. Conducted at various synagogues throughout the Jewish community to raise awareness of the needs of children and adults with disabilities.
Information and Referral. For parents of children with special needs to provide information and referral for behavioral and educational issues.
Resource Library. Books, periodicals, multi-media materials supporting family life issues as they present themselves. Information on: typical and atypical developmental ; life cycle events, child and family management; educational materials.
LINKS TO OTHER WEBSITES OF INTEREST
PLEASE NOTE: KULANU provides
the following information as an accomodation to its visitors but
in no way endorses any particular program or information provided
in the links below. Visitors are advised to consult their own health
care professionals for specific information and guidance.
EDUCATIONAL,
SOCIAL AND CAMP PROGRAMS
BJE (Board of Jewish Education)
Contact:
Rabbi Martin Schloss x384
Phylllis Miller x365
426 West 58th Street
New York, NY 10019
Phone: 212-245-8200
Fax: 212-397-1066
SINAI Special Needs Institute
Contact:
Laurette Rothwachs, Dean
1650 Palisade Avenue
Teaneck, NJ 07666
Phone: 201-833-9220
Fax: 201-833-8772
Email: DeanSINAI@aol.com
Chai Lifeline
Zahava Farbman
151 West 30th Street
3rd Floor
New York, NY 10001
Phone: 212-699-6633
Fax: 212-465-0949
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SOCIAL/RECREATIONAL
Kulanu
CONTACT:
Jonathan Cooper ACSW
PO Box 305
Cedarhurst, NY 11518
Phone: 516-569-6664
Fax: 516-569-0483
Email: info@kulanukids.org
National Council for the Disabled/Yachad
CONTACT:
Eta Levinson, Assistant Director
11 Broadway, 13th Floor
New York, NY 10004
Phone: 212-613-8235
Fax: 212-613-0796
Email: njcd@ou.org
The Rebecca Center for Music Therapy
The Rebecca Center for Music Therapy's approach
involves interactive use of live
improvised music to stimulate and develop communication, expressiveness,
socialization and relationship.
http://www.therebeccacenter.org/
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MENTAL HEALTH PROFESSIONALS
AND ADVOCACY
Long Island Advocates, Inc.
575 Underhill Boulevard, Suite 118
Syosset, New York 11791
Phone: 516-496-3606
Nefesh
CONTACT:
Nefesh Office
PO Box 3027
Teaneck, NJ 07666
Phone: 201-530-0010
Fax: 201-530-0020
http://www.nefesh.org
Jewish Board of Family and Children Services
CONTACT:
JBFCS Office
120 West 57th Street
New York, NY 10019
Phone: 212-582-9100
Fax: 201-530-0020
Email: admin@jbfcs.org
OHEL
CONTACT:
David Mandel, Director
Phyllis Mayer, Social Worker
4510 16th Avenue
Brooklyn, NY 11204
Phone: 718-851-6300
Fax: 718-851-2772
FEGS
CONTACT:
FEGS Office
315 Hudson Street
New York, NY 10013
Phone: 212-366-8441
http://www.fegs.org
OTSAR
CONTACT:
OTSAR Office
2324 West 13th Street
Brooklyn, NY 11223
Phone: 718-946-7301
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ORGANIZATIONS AND ASSOCIATIONS
ONLINE
AHA/AS/PDD: An organization that provides support and education for
families and individuals and professionals affected by Aspergers
Syndrome, High Functioning Autism, and other Pervasive Developmental
Disorders www.aha-as-pdd.org
Autism Society of America www.autismsociety.org
Learning Disabilities Association of America www.ldanatl.org/
Williams Syndrome Association www.williamssyndrome.org
International Rett Syndrome Association www.rettsyndrome.org
The Association for Retarded Citizens www.thearc.org
Downs Syndrome on the Internet www.downsyndrome.com
National Federation of the Blind www.nfb.org
Blind Children’s Center www.blindcntr.org
National Organization of Rare Disorders and Conditions (NORD) www.rarediseases.org
United Cerebral Palsy www.ucpa.org
Children and Adults with Attention Deficit Disorders
www.chadd.org
National Down Syndrome Society www.ndss.org
Epilepsy Foundation of America www.efa.org
Hydrocephalus Association www.hydroassoc.org
Muscular Dystrophy Association www.mdausa.org
National Information Center for Children and Youth with Disabilities
(NICHCY) www.nichcy.org
Tourette Syndrome Association www.tsa-usa.org
Tourette Syndrome Association www.tsa-usa.org
Special Parent Assistance and Resource Center www.geocities.com/sparcofucp/sparcwelcome.htm
American Academy of Child and Adolescent Psychiatry
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EDUCATION AND COMMUNITY
INTEGRATION
www.schoolmatters.com
Among its vast resources, SchoolMatters lets
users track and cross-reference data, learn about the community
around each school, and evaluate the class environment within them.
www.heritage.org/schoolchoice
Offers a database of school choice
laws and enrollment opportunities in each state.
The Center for Disability Information and Referral
(CeDIR) http://www.iidc.indiana.edu/cedir/
provides information to meet disability-related
needs. It sponsors an activity-filled site on disability awareness
for youth.
Educational Equity Concepts Inc. www.edequity.org.
A national organization that promotes bias-free
learning programs and materials.
ERIC Clearinghouse on Disabilities and Gifted
Education www.cec.sped.org/ericed.htm.
Database of professional literature and information related to the
education and development of individuals who have disabilities or
are gifted.
The Institute on Community Integration
ici.umn.edu.
This institute works with various organizations and educators to
promote activities that support communal integration of individuals
with disabilities. It also sells resources and curricula on education
children about different impairments.
National Information Center for
Children and Youth with Disabilities (NICHCY) www.nichcy.org.
A clearinghouse information on issues relating to disability with
an emphasis on children.
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CONDUCTIVE
EDUCATION
Inter-American Conductive Education Association
www.iacea.org.
A group comprised of professionals, parents, and grandparents of
people with Cerebral Palsy, and other neurological disabilities.
The organization's reach is international and incorporates all of
North America. Email: cond_ed@iacea.org.
The Conductive Education Website
www.conductive-education.org.uk.
A world-wide community of those whose common aim is to make Conductive
Education available for all. Conductive Education offers immediate
and long-term advantages for those who can access it directly and
strongly challenges present ways of understanding
and providing for disabilities. Email: nice@conductive-education.org.uk
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JEWISH AGENCIES
Board of Jewish Education of Greater New York
Special Education Center http://www.bjeny.org/94.asp.
Information about the BJE’s special education program.
The Friendship Circle www.friendshipcircle.org.
The Lubavitch Foundation’s programs for families with children
with special needs.
Jewish Educational Service of North America
www.jesna.org.
Jesna sponsors general and Jewish research and programs in special
education.
Jewish Deaf Resource Center
www.jdrc.org.
An organization dedicated to promoting the integration and participation
of the hearing impaired in all aspects of the Jewish community.
Matan www.matankids.org.
Matan is a team of professionals committed to enabling Jewish Day
schools to serve all children regardless of ability.
The National Jewish Council for
the Disabled http://www.ou.org/ncsy/njcd/default.htm.
The NJCD is the branch of the Orthodox Union dedicated to addressing
the needs of people with disabilities within the Jewish Community.
Its branches include our Yachad, On Our Way, a National Resource
Center and a Center for Inclusion.
P’tach www.ptach.org.
P’tach is an advocacy organization for children in Yeshiva
Day Schools with learning disabilities.
Pirchei Shoshanim www.pirchei.co.il/.
Pirchei provides special education resources for parents and educators.
The Lifetime Care Foundation for
the Jewish Disabled www.ohelfamily.org.
Helps parents plan for the future of their children with disabilities
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FOR
PARENTS/BY PARENTS
Family Village www.familyvillage.wisc.edu/.
The family village is “a global community that integrates information,
resources and communication opportunities” for people with
disabilities and their families.
Our Kids www.our-kids.org.
An online support group by parents for parents.
Exceptional Parent Magazine Online www.eparents.com. Search new
and former articles and resources.
Most Gene www.mostgene.org.
A directory of online genetic support groups.
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HEALTHCARE
Virtual Children’s Hospital
www.vh.org.
General info- with special information sheets for children.
The Center of Disease Control
www.cdc.gov.
Yet more general info- with statistics and government sponsored
research on many disorders.
The Boulevard www.blvd.com.
A directory of links to online products and retailers that serve
the physically challenged.
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LINKS
TO MORE LINKS
Disability resources of the Internet
www.disabilityresources.org
The Elija Foundation ~ Empowering
Long Island's Journey Through Autism http://elija.org/Links.html
a comprehensive list of links for autism, aspergers, and pervasive
developmental delay.
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